jp
New Member
Posts: 40
|
Post by jp on Aug 3, 2016 12:36:50 GMT -8
Feel free to have a good whinge about how bad you feel or what negative things happened today.
|
|
jp
New Member
Posts: 40
|
Post by jp on Aug 3, 2016 14:20:13 GMT -8
I'm short sighted but too often miss 'seeing' words despite reading them. Cognitive impairment that seems to be getting worse with my advancing age. The more I try to concentrate doesn't necessarily mean that it improves.
|
|
janec
New Member
Posts: 25
|
Post by janec on Nov 11, 2016 2:43:06 GMT -8
My gripe!
Below is what I just wrote to a friend with MS. Background is that I found a treatment (IGs) that made me remarkably (out of this world) well. Since then been trying have more:
The immunoglobulins (IGs) aren't actually drugs. They are the immune component of human blood - derived from donor blood. Maybe that's why they were so outstandingly good for me?? Steroids were so bad I can say after all these years (and still suffering from them) that they took me towards death.
I had a neuro apnt two days ago with the specific purpose of working out how I can have them as a chronic treatment and was told they are not available to PwMS as chronic treatment - only relapse treatment. DANG!!!
I will persist. I felt the neuro was fixed in his thinking and not curious/willing to look for ways that I can be well. I am going to ask for a referral to an immunologist. It's bloody awful when there is something that can make me well and seemingly no one in the medical profession is actually willing to help me be well. I've been fighting on this for months and nothing!
** No negative response please. I'm kinda hanging on by only threads. **
|
|